Tuesday, October 2, 2007

And the greatest of these is Love!

Ahh one of my more favorite sayings. Is it because of love why we do the things we do as moms? I do believe so. My sweet hubby made a gentle reminder that my eyes were dark and I should get some rest. I have been so consumed with my own goals the past few weeks that even scrapping has been a distant idea. That will change very soon.

I am having such a hard time getting Alexander what he needs. I am currently contacting anyone and everyone who will listen to our story. I know, yes I know - there are thousands of stories in the world so what sets us aside? Well because he is my son and he is Love. That is all I need to keep on trucking.

We still do not have an EA for him at school and I just put in the 999th phone call to the school board. Each time I am becoming a little more assertive as I know school just began. Sad thing is this is his education and it is very important to me to give him what he needs medically. Another problem is the school needs help for him but the board has not granted it yet.

I am inches away from grasping anyone in the Media that will listen. I have hit a major road block and it is very disturbing to me. Alex does not qualify for services here. Funny thing is anyone on the Ontario Insurance is suppose to be able to use resources when needed. I found that loop hole in some agencies.

The problem is Alex was not born in Canada so he does not qualify. We are here legally, we carry all the Ontario benefits our neighbors do. We even pay Ontario taxes to fund these agencies and yet they do not even look at my son.

Medically, I have letters of referrals and recommendations for him. I have a chance at this age and till around 8 to really pull him as much out of his spectrum level as possible. Something to do with this is the catch up years. How can I if no one will help us?

To make matters worse, even the agency who does nothing but create a file and give you community resources would not help us. How sad is that to fail one that needs it???

I am tired, I am drained. I sit hours upon hours writing anyone who will listen. I have called the MPP and more. I am not going to stop fighting for my son. How can I live if 6 years from now he is still at square one and I had the chance as a mom to help him become more?

I have not missed the sleep much because I have not thought of it too much. Now I am lol. Chasen is headed to the dr in a few minutes to see what is up with him. I really think nothing major but he is no Chasen. Last tuesday he woke up at 2 am puking and a fever of 102.3. It responded well and came down with Motrin. No more fever no more pukes. But we have not had a good nights rest out of him since then and last night he just whimpered. Here is well wishes for my babe!

I have to get busy too! Because of LOVE (gee I like that word today) my husband and I are taking our first vacation alone in a decade. We have always saved vacation time for visiting family at the holidays and our own family vacations. We choose to skip Disney this year due to end of the year issues and go away. We have no sitters or anyone so we are taking the boys to my moms and spending 3 days alone in a cabin in the mountains. Nothing major and an hour from my moms just incase but still no children. I wish it were longer but its a 2 day trip there and 2 back. It is the best I can do.

Alrighty, no time for proof reading so ignore the typos. I am going to get Chasen to the clinic as they open in 15 mins and I do not want to wait all morning there. I have more calls to make this afternoon and a WorkShop by the Ontario Autism Society tonight to attend....will be another late night as I have to travel to this one.

Hugs to all my friends! I love all of you!

2 comments:

Anonymous said...

((hugs)) for you and the boys. You are such a dedicated mom.

And YAY for a vacation alone! I've never had one of those...

Briana said...

I hope your perseverance pays off soon. That's not right that anyone would overlook a child needing assistance, no matter where tehy were born!